The ‘Care Bundle’ has been developed by The Paul Ridd Foundation. It will help the Welsh HNS Health Boards and Trusts to be consistently alert to and respond to the needs of people with learning disabilities and their families and carers, when they access general hospital services.
FASD (Foetal Alcohol Spectrum Disorder) is caused by drinking alcohol during pregnancy and is a disorder which leads to lifelong complications and disabilities.
We at the All Wales Forum of Parents and Carers are working in collaboration with parent carer group FASD Cymru, to provide FASD individuals and their families with a platform and a voice.
The All Wales Forum has been working to bring sibling carers together to form a national voice across Wales.
For the last few years, the AWF has been delivering workshops across Wales informing carers of what rights they have under the Social Services and Well-being (Wales) Act and how to exercise those rights. Many of the carers who attended these events fed back the need for targeted support work to be delivered around improving the opportunities of engagement for carers at both a local level and regional level.
Since the launch of the Social Services and Wellbeing (Wales) Act 2014 back in April 2016, the forum has been tracking how much real understanding and awareness there is amongst family carers of their rights and entitlements around the Act.