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  • On September 16th 2026, we held the Caring for Change: Family Carers, Community and the Future event at Cabaret, at the Wales Millennium Centre. This event was the culmination of six years of work; gathering good practice and pockets of excellence across Wales and using the learning to enable family carers to co-produce, with Local Authorities and Third Sector, services that would improve their wellbeing. The area of improvement addressed by the project had been identified through ongoing conversations with families in Wales and could be divided into three main areas, which were the themes of the day, Transitions, Respite and Short Breaks and our over-arching theme – Caring Communities. The event was an occasion to bring together all the incredible project’s stakeholders and partners to share with each other the ideas and community-based models that are making a difference for citizens in Wales and look at how we can upscaled there grassroot level projects and include them in government programmes of work. As always, Carers are at the heart of everything we do and we want to take a moment to thank all the family carers who have co-produced the project with us and have supported our work throughout the years. We wouldn’t be able to do anything of what we do without your voices, expertise and lived experience. Thank you for your time, your effort and your knowledge.   Transitions For transitions, we heard from Dr Louise Rixon, who is a parent carer, family researcher and charity manager of the Gwent Parent Carer Network and from Kim Dolphin, who is the Carers Services Development Manager at Monmouthshire County Council. They presented the Monmouthshire Toolkit, also known as the Parent Carer Handbook, that was co-produced between the the Local Authority, The GPCN and the All Wales Forum. Please find the presentation here – Presentation Toolkit And the Toolkit/Parent Carer Handbook on the Monmouthshire County Council website, here.   Kathryn Morgan, who is the National Embedding Co-Lead at IMPACT, talked to us about the Transitions from Child to Adult Services project between IMPACT and Pembrokeshire County Council. The project wanted to shine a spotlight on their Transitions service for young people with learning disabilities. The Local Authority acknowledged that improvements could be made and wanted to explore how to ensure a smooth experience for young people as they move from Child to Adults Services. English subtitles  https://youtu.be/uAnUC_yqeYU Welsh subtitles  https://youtu.be/MTbhATHHvm8 This film shared at the event which is a part of the presentation, was coproduced with young adults and their families as part of the IMPACT ‘Transitions from Child to Adult services’ project in partnership with Pembrokeshire County Council. It captures the experiences of young people with learning disabilities as they prepare for adulthood. Gathering national and local evidence about what works is the initial stage of every IMPACT project.  Over 60+ interviews took place in Pembrokeshire, which included young people and their families who wanted to ensure their experiences would be heard. The young people have a shared ambition – that their voices and the key messages within the film will be elevated and shared with a much wider audience, including social care professionals, commissioners, policy and decision makers. Please find the presentation here – IMPACT Transitions project – Presentation And you can see more of Kathryn and IMPACT’s work on their website.   Last to present on the Transitions theme was the Good Life Alliance, which is a Wales-based alliance of individuals and organisations looking at improving transitions from home for people with learning disabilities in Wales. Presenting on behalf of the Alliance we had Rhian Jones, CEO for Drive -Wales, a supported living provider for adults with a learning disability in South East Wales and Belinda Bradley, who is part of the North Wales Learning Disability Transformation team (North Wales Together). Please find the presentation here – GLA Presentation And you can find our more about the Good Life Alliance here.   Creative Short Breaks Our first presentation on Creative Short Breaks was from Kay Tyler, who is a parent carer themselves. They have been a member of The Grapevine, a group of Parents and Carers of Adults with Learning Disabilities since 2016. They are also a Carer Representative on a number of Local, Regional and National Forums and a Trustee of the All Wales Forum of Parents and Carers of People with Learning Disabilities. The Grapevine is group of parents & Carers of adults with learning disabilities in Rhondda Cynon Taf. The groups aim is to challenge and change service provision to ensure people with learning disabilities and their parents & carers lead a “good life”. The presentation introduced us to the group, the activities they do and the value a good group break, created under the All Wales Forum Seibiant project, brought to the Carers wellbeing. Please find the presentation here – The Grapevine & Seibiant Project Presentation   We then heard from Nick Andrews is a Registered Social Worker and Research and Practice Development Officer in Swansea University, where he co-ordinates the Developing Evidence Enriched Practice (DEEP) programme. During the presentation, Nick outlined a collaborative journey from one-size- fits-all respite towards personalised short breaks. This included an introduction to a set of principles for the development of short breaks, which were co-produced with unpaid carers. He also outlined some key findings from an evaluation of the Welsh Government funded Short Breaks Scheme by Bangor University using surveys and storytelling. Please find the presentation here – Short Breaks Presentation – Nick Andrews Find out more about the DEEP programme here.   Last on Short Breaks, we heard from Gwen Anslow, from the All Wales Forum. Gwen is the Project and Engagement coordinator for the All Wales Forum. Having joined the team at the beginning of Caring Communities of Change, Gwen has been a part of every branch of the project and supported the Forum during the pandemic to reconnect digitally with its network of peer support groups. Since January 2026, Gwen has taken the lead More…

  • Notice of Annual General Meeting 2026 Members of the All Wales Forum Annual General Meeting are invited to attend our AGM on: 16 September 2026 4:00 pm to 4:30 pm Cabaret @ Wales Millennium Centre and online via Microsoft Teams (Hybrid Meeting) – CLICK HERE FOR THE LINK The AGM will include: Review of the Trustees’ and Directors’ Annual Reports Presentation of the 2025/26 Financial Statements Approval of the Annual Accounts Update on the work of the Forum and future priorities We welcome anyone to attend as an observer. For further information, please contact: 📧 admin@allwalesforum.org.uk 📞 02922 790089 Please find the Agenda here 202609 – AGM Agenda

  • A group of university researchers (from the University of Birmingham, Manchester Metropolitan University, The University of South Wales, The University of Glasgow, and Queens University Belfast) and we have partnered with Learning Disability England, PAMIS, Positive Futures, and ourselves, The All Wales Forum. We would like to invite you to take part in ‘The Lives of People with Profound and Multiple Learning Disabilities in the UK’ survey. The survey is specifically about the lives of people with profound and multiple learning disabilities (PMLD) across the UK. We want to know more about the lifestyle of people with PMLD, and how we can better support them going forward in the future. This research is funded by the Baily Thomas Charity. Please find more information below and how to apply on the website – https://www.pmld-survey.ac.uk/ Privacy Notice Birmingham PMLD 2026.04.06 PIS PMLD V1.04 C2 – Short Copy PIS PMLD V1.04 C2 – 13 07 26 Consent Cohort 2 Online V1.04 PMLD_InvitePost_v7

Welcome to our website

 

The AWF is unique among Learning Disabilities bodies in Wales in that it is the only organisation that represents nationally, collectively and solely the views of Parents and Carers of people with learning disabilities. We are an umbrella body for locally and regionally based organisations and support groups made up of parents and carers. Our wider alliance partners share a commitment in working to improve the rights and recognition of parents and carers and families supporting loved ones living with learning disability. The Forum is also governed by parents and carers, ensuring that our client base has a clear input into the strategic direction and core work of the organisation.

The Forum prides itself on our capacity to reach out across Wales and make real changes, including influencing policy, supporting local alliance groups, engaging in innovative projects and highlighting key areas of need that are yet to be addressed fully.

We achieve most of our work through the true spirit of partnership and shared resources, and we believe that in the future years this method of working will not only continue to prove effective in delivering outcomes, but it will also become essential if we are to continue to generate innovative and essential support solutions to families across Wales.

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Advice helplines


Carers UK provides high quality advice and information to carers and the professionals who support carers. Staffed by experts, they have years of experience of dealing with the problems carers face.

The Advice line is open Monday to Friday, 10am – 4pm, tel: 0808 808 7777

mencap cymru

Mencap WISE is a free service that offers support, advice and information in English and Welsh. The service is available to everyone in Wales, whether you are a person with a learning a learning disability, a family member or a friend. They can give you the information you need to understand the rights of people with a learning disability and to support them to access services or challenge decisions.

The Mencap WISE Helpline is open Monday to Friday, 9am – 5pm, tel: 0808 8000 300

The EYST Multi-lingual Helpline Wales is for anyone over the age of 18 living in Wales, particularly if you identify as Black, Asian or Minority Ethnic, or if you would like to speak to someone in a language other than English or Welsh.

The EYST Helpline is open 10am to 6pm, Monday to Friday. Phone 0808 801 0720 or text 07537 432416.

Community Groups

Brecon Carer Groups
Bridgend Parent and Carer Group
Caerphilly Carers Group
Cardiff and the Vale Parents Federation
Ceredigion Carers Forum
Community Lives Consortium Relatives Forum
Conwy Connect – Carers
Denbighshire Carers Forum
Learning Disability Flintshire
Gwynedd LD Carers outreach
Knighton Parent Carer Group
Powys Carers Groups
Mencap Carers Support Group,
Anglesey Mencap
Carmarthenshire family support

Merthyr Carer Action Group
Monmouthshire Carers Group Montgomeryshire Family Carers Centre
Montgomeryshire Open Door parent carer group
Newtown Newtown Carers Group
Parents for Change, Newport
Pembrokeshire Carers Group
Radnor Carers Group
Rhondda Cynon Taff Carers group
Smile Parent Group
The Carers Outreach Service, Bangor
Welshpool Carer Group
Ystradgynlais Parent Group
Llandrindod Wells Carer Group

Mencap Carers Support Group, Anglesey

Denbighshire Carers Forum

Learning Disability Flintshire

Ceredigion Carers Forum

Wrexham Carer Group

The Carers Outreach Service, Bangor

Gwynedd LD Carers outreach

Conwy Connect – Carers

Newtown and Welshpool Carer Group

Montgomeryshire Open Door parent carer group

Montgomeryshire Family Carers Centre

Radnor Carers Group

Knighton Parent Carer Group

Brecon Carers Group

Pembrokeshire Carers Group

Ystradgynlais Parent Group

Mencap Carmarthenshire family support

Merthyr Carer Action Group

Monmouthshire Carers Group

Rhondda Cynon Taff Carers group

Caerphilly Carers Group

Community Lives Consortium Relatives Forum

Bridgend Parent and Carer Group

Parents for Change, Newport

Cardiff and the Vale Parents Federation