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  • Join us for an online event to explore the Respitality model and discuss how we can start co-designing it in Wales. What is the event about? All Wales Forum and partners are hosting a conversation on the Respitality model. The event will be held virtually in Powys, from 10:30am – 12pm on the 25th of November. Attendees will learn more about Respitality, along with plans for the exploration of its co-design and co-delivery of the model in Powys, through the Caring Communities of Change project. Who would we like to talk to? We would like your input if you are – – A parent or unpaid carer of a loved one with a learning disability – A network professional working with or for people with a learning disability and their families – A volunteer working with people with a learning disability and their families in the community More about the event All Wales Forum and partners are exploring the Respitality Model and other forms of alternative respite and short breaks in Powys for the benefit of learning disability family carers. Respitality is a new model of respite that moves away from more traditional settings and looks at connecting carers to organisations within hospitality, tourism and leisure sectors for flexible alternative offers of short breaks and respite. The All Wales Forum and partners have committed to co-designing this model in Powys for the benefit of learning disability family carers, and we would like to start a conversation with attendees about what are the practical steps we could all take to start co-designing this model in the region and other areas of Wales. During this event, you will be introduced to Respitality and how it works. You will find out how Scotland have created a social franchise and put this model of respite into practice and you will be given an update on a review of how respite is currently working in Wales. We will spend some time in smaller groups to explore your thoughts on this model and what would be needed for this to be successful for you and your family. How can I join? To join this event, please register via the Eventbrite link below – Register for the event PLEASE NOTE THIS EVENT WILL TAKE PLACE ON ZOOM. THE LOGIN DETAILS WILL BE EMAILED TO YOU ON REGISTRATION. Additional information If you would like some background information on the Respitality model in Scotland, please visit – https://www.sharedcarescotland.org.uk/respitality/ Please also follow us and keep an eye on our social media feed over the next few weeks, where we will be sharing stories from across the country about flexible respite and short breaks Facebook & Twitter – @AllWalesForum

  • Registration is open, please check the list at the end of the post for your local authority’s link to the application form.  The Welsh Government has published the guidance on how the £500 support payment for unpaid carers will roll out. To recap, it is a one-off £500 payment available for unpaid carers receiving Carers Allowance on 31 March 2022. Eligible unpaid carers can claim the payment from their local council. Each Local Authority will also have its own guidance pages, including a link to its registration form and details on how to register offline. These should all be available by May 16 when registration opens. The registration process will open from 9 am 16 May 2022. The registration process will close at 5 pm 15 July. You must submit your registration form before then. Who can apply? You will be eligible for the payment if: you were receiving Carers Allowance on 31 March 2022 your application for Carers Allowance is in progress and your claim is backdated to 31 March 2022 you live in Wales Will the payment affect other benefits? The payment will not impact any benefits you may be receiving. The payment will not: be taxable be subject to National Insurance contributions be included as part of income when calculating entitlement for tax credits Beware of scammers Be aware of fraudsters asking for your bank details. We have been made aware of a scam involving cold calling, targeting families and asking for bank details using the £500 payment as the excuse. Please remember, that only your local council is responsible for making these payments. Read the full announcement here in English And here in Welsh Please find the list of links to the application form to the relative local authority. Local Authority links to apply for the payment: Vale of Glamorgan: Click here to apply Newport: Click here to apply Torfaen: Click here to apply  Cardiff: Click here to apply  Blaenau Gwent: Click here to apply Monmouthshire: Click here to apply Caerphilly: Click here to apply Rhondda Cynon Taff: Click here to apply Merthyr Tydfil: Click here to apply Bridgend: Click here to apply Neath – Port Talbot: Click here to apply Powys: Click here to apply Carmarthenshire: Click here to apply Swansea: Click here to apply Ceredigion: Click here to apply Pembrokeshire: Click here to apply Gwynedd: Click here to apply Flintshire: Click here to apply Wrexham: Click here to apply Denbighshire: Click here to apply Isle of Anglesey: Click here to apply Conwy: Click here to apply    

  • Coronavirus and people with learning disabilities: the study In August 2020 group of researchers and organisations who work with people with a learning disability and their families and carers across the UK started the Coronavirus and People with a Learning Disability study. This research was funded by UK Research & Innovation. The study was conducted across the UK to collect a holistic view of how coronavirus has affected people with learning disabilities and their families.   We worked with Cardiff University and the University of South Wales who led the study in Wales, and in collaboration with All Wales People First and Learning Disability Wales.    You can find all the results for the UK-wide study here. As part of our work, we set up a group of carers who would through feedback shape the surveys and other parts of the research, together with the other involvement groups across the UK. We wanted to thank our group for all their time and honesty in our meetings. The experience and generosity of the group members not only helped develop the research but also informed us of hardships carers face around Wales, spurring us forward on our journey towards change.   We also want to recognise and thank all carers who participated in the research and ensured their loved ones had their experience counted in the research.  The Welsh team of the study have recently gathered all the Welsh data in the research and drafted a report which you can find below. Please click on the links to see the document. Welsh findings summary (English) Welsh findings summary (Cymraeg) Welsh Findings Easy Read Moving on…  ‘What would have helped you and your family over the last 2 years?’  The focus of this research was individuals with a learning disability, but we recognise that family carers own voices and experiences are vital.  During the pandemic, some family carers of people with profound and multiple learning disabilities have faced incredibly difficult situations, with support services and staff being redeployed to deal with the issues brought about by the pandemic.    We are currently working with Queens University Belfast to connect carers to research highlight some of the key issues carers faced during the COVID-19 pandemic. In partnership with QUB, we are connecting carers to research that will create support and resources that will help families in the future.  To express your interest in taking part in this research, please contact us at caringcommunities@allwalesforum.org.uk or contact Trisha Forbes from the Queen’s University, Belfast directly, Trisha.Forbes@qub.ac.uk  If you have any doubts or questions, please don’t hesitate to get in contact. caringcommunities@allwalesforum.org.uk 

Welcome to our website

The AWF is unique among Learning Disabilities bodies in Wales in that it is the only organisation that represents nationally, collectively and solely the views of Parents and Carers of people with learning disabilities. We are an umbrella body for locally and regionally based organisations and support groups made up of parents and carers. Our wider alliance partners share a commitment in working to improve the rights and recognition of parents and carers and families supporting loved ones living with learning disability. The Forum is also governed by parents and carers, ensuring that our client base has a clear input into the strategic direction and core work of the organisation.

The Forum prides itself on our capacity to reach out across Wales and make real changes, including influencing policy, supporting local alliance groups, engaging in innovative projects and highlighting key areas of need that are yet to be addressed fully.

We achieve most of our work through the true spirit of partnership and shared resources, and we believe that in the future years this method of working will not only continue to prove effective in delivering outcomes, but it will also become essential if we are to continue to generate innovative and essential support solutions to families across Wales.

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Advice helplines


Carers UK provides high quality advice and information to carers and the professionals who support carers. Staffed by experts, they have years of experience of dealing with the problems carers face.

The Advice line is open Monday to Friday, 10am – 4pm, tel: 0808 808 7777

mencap cymru

Mencap WISE is a free service that offers support, advice and information in English and Welsh. The service is available to everyone in Wales, whether you are a person with a learning a learning disability, a family member or a friend. They can give you the information you need to understand the rights of people with a learning disability and to support them to access services or challenge decisions.

The Mencap WISE Helpline is open Monday to Friday, 9am – 5pm, tel: 0808 8000 300

Community Groups

Brecon Carer Groups
Bridgend Parent and Carer Group
Caerphilly Carers Group
Cardiff and the Vale Parents Federation
Ceredigion Carers Forum
Community Lives Consortium Relatives Forum
Conwy Connect – Carers
Denbighshire Carers Forum
Learning Disability Flintshire
Gwynedd LD Carers outreach
Knighton Parent Carer Group
Powys Carers Groups
Mencap Carers Support Group,
Anglesey Mencap
Carmarthenshire family support

Merthyr Carer Action Group
Monmouthshire Carers Group Montgomeryshire Family Carers Centre
Montgomeryshire Open Door parent carer group
Newtown Newtown Carers Group
Parents for Change, Newport
Pembrokeshire Carers Group
Radnor Carers Group
Rhondda Cynon Taff Carers group
Smile Parent Group
The Carers Outreach Service, Bangor
Welshpool Carer Group
Ystradgynlais Parent Group
Llandrindod Wells Carer Group

Mencap Carers Support Group, Anglesey

Denbighshire Carers Forum

Learning Disability Flintshire

Ceredigion Carers Forum

Wrexham Carer Group

The Carers Outreach Service, Bangor

Gwynedd LD Carers outreach

Conwy Connect – Carers

Newtown and Welshpool Carer Group

Montgomeryshire Open Door parent carer group

Montgomeryshire Family Carers Centre

Radnor Carers Group

Knighton Parent Carer Group

Brecon Carers Group

Pembrokeshire Carers Group

Ystradgynlais Parent Group

Mencap Carmarthenshire family support

Merthyr Carer Action Group

Monmouthshire Carers Group

Rhondda Cynon Taff Carers group

Caerphilly Carers Group

Community Lives Consortium Relatives Forum

Bridgend Parent and Carer Group

Parents for Change, Newport

Cardiff and the Vale Parents Federation