(this page is under development so please do keep checking for updates)
Worried About Change
‘Worried about change’ was a workshop that had been funded by an Awards for All grant, and had come about as a result of conversations that The All Wales Forum had been having with Alzheimer’s society in Wales, specifically the lack of real support to those with a learning disability that get a diagnosis of dementia, the lack of information around dual diagnosis and support to family carers and supporting organisations. We were also interested in exploring what support systems and pathways there are across Wales, and also what shared frustrations & barriers there are to making changes where needed. Worried about change workshop was a starting point (we hope) for a more ongoing piece of work and for us to start to work together with a small group of people to look at addressing the needs, generating solutions and lobbying (where needed) the Minister for support in taking action on key areas around dementia affecting people with learning disabilities.
The day itself provided a mixed audience of family carers, a social service staff and supported living staff, with an introduction to dementia, some personal reflections from a family that have lived with the disease and some information about dementia and learning disabilities. We all took part in a Dementia Friends session, which all found enlightening and very useful.
Below you can find information and links to useful information and events about dementia & learning disabilities
The Alzheimer’s Society produce a wide range of publications designed to support and inform anyone affected by dementia. You will find information about all aspects of dementia, including the different types and causes and aspects of treatment, living with dementia or caring for someone with dementia on their website www.alzheimers.org.uk
Learning Disabilities and Dementia – a factsheet
This factsheet explains how dementia may be experienced by someone with a learning disability and gives some suggestions for how the person can be supported.
click here > Learning_disabilities_and_dementia_factsheet
What is dementia – an easy read factsheet
This Easy Read factsheet is for people with learning disabilities. It is about what dementia is and how it affects people.
follow link here > LINK
Supporting a person with dementia – an easy read factsheet
An Easy Read factsheet intended for people with learning disabilities. Contains advice on how to support a person with dementia: talking/listening, respecting, dealing with changes in behaviour
Follow link here> LINK
What is dementia – a detailed factsheet
This factsheet explains what dementia is, including the causes and symptoms, and how it is diagnosed and treated. It also looks at some of the different types of dementia.
click here >What_is_dementia_factsheet
Understanding Dementia 2015: A Welsh Perspective
On the Thursday 3rd September 2015, University of South Wales,
Glyntaff Campus, CF37 4BD
Dementia is one of the biggest global public health challenges facing our generation. This event aims to bring together a wide range of people with a common interest in the Care and Support of people living with Dementia in Wales.
It will include a presentation ‘’The Case of the Forgotten Dementia’’ by the Learning Disability Team from the University of South Wales.
Draft Programme USWDEM15 Provisional Programme
Booking Form USWDEM15 Booking Form & Payment Details
Talking Together Handbook.
Guidance has been issued on how social workers, care staff and personal assistants can help people with learning disabilities understand about growing older and living with dementia.
The handbook, produced by the Foundation for People with Learning Disabilities, sets out 20 activities to engage people about the changes that may occur as they get older. It includes guidance on the timings and format of each session and includes a series of visual prompts that can be used. The guidance is based on the learning from running group sessions at two pilot sites: a shared house for six people with learning disabilities where one of the housemates had developed dementia and a small day centre for older people with learning disabilities where one person had dementia.
Christine Towers, who authored the handbook, said that more needed to be done to help people with learning disabilities understand changes linked to the ageing process.
“People with a learning disability are at greater risk of developing dementia compared to the rest of the population and the risk is significantly higher for people with Down’s syndrome,” she said.
“The timing of this handbook is particularly important because with the move from residential care to supported living, more people are in shared houses in the community and will need support to cope with dementia if they or one of their housemates develop the disease.”
By Andy McNicoll on May 20, 2015 www.communitycare.co.uk
The ‘Talking Together’ handbook can be found here INSERT talking-together booklet
Dementia Friends – What you can do about dementia
Dementia Friends about giving more people an understanding of Dementia and the small things that could make a difference to people living in their community.
It makes such a huge difference to people with dementia if those around them know what dementia is how it might affect them.
Introducing Dementia Friends
By the end of 2015, The Alzheimer’s Society want there to be a million people with the know-how to help people with dementia feel understood and included in their community.
Dementia Friends champions are volunteers who talk to people about being a Dementia Friend in their communities after attending a training course and receiving ongoing support.
A Dementia Friend learns a little bit more about what it’s like to live with dementia and then turns that understanding into action – anyone of any age can be a Dementia Friend.
Learn more about dementia friends from this podcast by holding your ctrl key and clicking here **
For a full transcript of this podcast hold your ctrl key and click here
Or visit the Dementia Friends webpage https://www.dementiafriends.org.uk/
**dementia friends is now a UK wide campaign
Dementia Friends ‘Bookcase analogy’ a useful way to explain Dementia
In the following film Natalie Rodriguez, Dementia Friends Champion, uses a bookcase analogy to describe how dementia may affect a person. This simple explanation, originally devised by Dr Gemma Jones, can be helpful for Dementia Friends Champions to explain dementia to others.
Dementia Friends ‘Bookcase analogy’ a useful video which helps explain dementia ctrl key and clicking here
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