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  •   The idea of a ‘Staycation’ isn’t new, lots of families from across Wales take holidays in the beautiful Welsh country sides, seasides and bustling Welsh cities every year. We would like to see how we collectively explore ways we can make Staycation work for learning disability families in Wales. Specifically, we would like to explore the idea of a Staycation ‘community’ that creates, shares and supports each other by providing and making use of shared resources based on access needs. Start a journey with us through this conversation and hear from some wonderful organisations supporting people with disabilities and their families to access short breaks and holidays. Joining information  The event will be hosted on Zoom by All Wales Forum from 10:30am – 12pm on the 18th of February  Please click here for the Eventbrite link to register to the event You should have received your Eventbrite confirmation through the email address you have registered with, if you did not receive this, please contact us directly.  Additional useful information   Please also follow us on Social Media for updated news and information. Facebook & Twitter – @AllWalesForum   Contact us   In the lead up to the event, please feel free to contact us with any questions or access requirements you may have.

  • The Flowchart and the FAQs below have been built on the current information provided by the authorities; we will keep the page updated as the situation develops. Thank you for your support.  Welsh Government Updated Covid-19 Vaccine Guidance for Carers & People with Learning Disabilities – 24th Feb 2021 We recognise there are still some details that need to be clarified, but, as All Wales Forum understands, Welsh Government are creating a web form for carers who are eligible to self-identify. We are waiting for the Welsh Government to confirm details but expect more to be communicated early next week. Carers registered with their GPs as carers will already be being processed for vaccination by their GP practice and will hear directly about their appointments. https://gov.wales/covid-19-vaccination-unpaid-carers-html Further to the campaigning work we have been doing with our partners, please find the guidance for covid-19 vaccine prioritisation for People with a Learning Disability: https://gov.wales/covid-19-vaccinations-individuals-learning-disability-or-severe-mental-illness-html Following this announcement, we will accordingly edit the information below to align with current Welsh Government Guidance In the meantime, please visit Carers Wales FAQ regarding eligibility as it it updated with the current Welsh Government Guidance. Thank you for your patience. I look after someone with a learning disability, am I an unpaid carer?  You might be. A carer is someone of any age who provides unpaid support to family or friends who could not manage without this help. This could be caring for a friend or family member who due to illness, disability, a mental health problem or an addiction cannot cope without their support. Please see more information around the Definition of a Carer – All Wales Forum  As a carer, you have rights. Wales has long taken a keen interest in promoting the rights of carers to be heard, respected and valued for the essential role that they play in their local communities. As such, there are a number of rights and entitlements that carers living in Wales can now benefit from. Please find out more about your rights here Carers Rights – All Wales Forum  In pre-pandemic times, there were several ways of getting registered as un unpaid carer. The most common one is through your GP, you can have the title of unpaid carer added to your medical notes. Another way is registering with Social Services in your area and request a Carer’s Assessment.  Please get in touch if you have any doubts or questions.  admin@Allwalesforum.org.uk  I’m an unpaid carer – am I in a priority group?  Yes, Public Health Wales have confirmed that unpaid carers fall in priority group 6 in the first phase unless they have a specific reason to come into any of the earlier groups i.e age or medical/clinical vulnerability, and Vaughan Gething has re-confirmed this on the 14th of Jan in line with the JCVI advice.  Gething’s tweet – Vaughan Gething MS on Twitter: “Happy to clarify and confirm for @carersworldlive @CarersWales that unpaid carers will be in priority group 6 in the first phase of Covid vaccination in line with JCVI advice.” / Twitter   Green Book 14 A – Pages 8-10 – COVID-19 Greenbook chapter 14a (publishing.service.gov.uk)  Public Health Wales Eligibility Criteria – About the vaccine – Public Health Wales (nhs.wales)  I am not registered as an unpaid carer – how do I notify Local Authorities to get priority?  The All Wales Forum of Parents and Carers, Carers Wales and Carers Trust have written a letter for Welsh Government to press for clarity on how unpaid carers will be identified and invited for vaccine. We are expecting some feedback over the next couple of weeks and will update as soon as we can. In the meantime, we would recommend that unpaid family carers make sure their GP practice has them down as unpaid carers on their medical files. We will update this webpage and our social media when we have more clarity around this point.  When would I get the Vaccine if I’m an unpaid carer in priority group 6?   You should be offered the vaccination by spring with the current vaccination timetable and strategy.  Please find the Welsh Government’s strategy here – New Covid vaccination strategy published | GOV.WALES  Why do I have to wait to get the COVID-19 vaccine? Please find an Easy-read leaflet from Public Health Wales, answering this question, here The person I care for is in a higher priority group than I, does that change anything? Can I get the vaccine at the same time?  The advice by JCVI is that carers are in priority group 6. We are in conversation with the Welsh Government and we are advocating for carers to be bumped up a group if the person they care for is in a higher priority group. We are waiting for further developments. We will keep you updated and edit the page as the situation develops. Please get in touch if you have any similar questions or queries that are not included on this page as we can feed them into the conversation. My child is under 16 and therefore not eligible for the vaccine. Would I be allowed to have it in their place?  The AWF are campaigning on parent carers of children under 16 to be able to have the vaccine in lieu of them if the child received a shielding letter.   As mentioned above, we will keep you updated and edit the page as the situation develops. Please get in touch if you have any similar questions or queries as we can feed them into the conversation.   I am elderly and considered vulnerable, does that change anything?  In this case you may be called earlier than the person you care for, depending if you fall in a higher priority group   Check eligibility either using the flowchart provided above or the priority list provided below:   residents in a care home for older adults and their carers   all those 80 years of age and over and frontline health and social care workers   all those 75 years of age and over   all those 70 years of age and over and clinically extremely vulnerable individuals   all those 65 years of age and over   all individuals aged 16 years to 64 years with underlying health conditions which put More…

  • Updated information for parents and carers on vaccines   Welsh Government Vaccine Board has updated the booklet on the Public Health Wales website that shows the priority list for the Coronavirus vaccine. We advise parents and carers to read pages 8-10 of the green book 14a on the Public Health Wales website for the most thorough technical information on the vaccine. Please click here to go directly to the Public Health Wales website. For your understanding, AWF have prepared a couple of scenarios to explain the current position of parents and carers when it comes to priority groups for vaccination. The priority list is being regularly reviewed, and we will update you all if things change.   Summary of current priorities for vaccinations as of December 2020. The latest guidance now specifies that people with a learning disability and a clinical vulnerability (for example, those shielding/Down’s syndrome) who are 16 and over will be called for the vaccine in priority group 4, with the over 70s. The remaining learning disability population who may not be as likely to catch COVID-19, but if they do, may be more likely to be sicker with it – have been put under the ‘other at-risk groups in the population’ category – which is group 6, with the over 50s. When an unpaid carer will receive their vaccination, will depend on both their age and the category that the relative they support is based in. Their vaccine may be triggered by either their own age, or the carer element, depending on which one comes higher up the current priority listing.   Scenario 1 If a carer is 55 and looking after a child with a clinical vulnerability (such as downs syndrome or other medical condition in the shielding list), they should be vaccinated at the same time as the person they care for – as their relative is in priority group 4, and the carer would be in group 6 due to their age. So, in this case they would get the vaccine ahead of others in the carer age group bracket. Scenario 2 But, if the carer were 75 and over and looking after a child with clinical vulnerabilities, they would get called for the vaccine due to their age, not because they are a carer, and it is highly likely they would get called first as a result. So, the carer would get the vaccine first before the cared for, due to age. For further details on how the list has been compiled and groups within it, please follow the link above to the Greenbook document. If you still have some confusion please touch base and we will do our best to assist. E: admin@allwalesforum.org.uk T: 07976 223992

Welcome to our website

The AWF is unique among Learning Disabilities bodies in Wales in that it is the only organisation that represents nationally, collectively and solely the views of Parents and Carers of people with learning disabilities. We are an umbrella body for locally and regionally based organisations and support groups made up of parents and carers. Our wider alliance partners share a commitment in working to improve the rights and recognition of parents and carers and families supporting loved ones living with learning disability. The Forum is also governed by parents and carers, ensuring that our client base has a clear input into the strategic direction and core work of the organisation.

The Forum prides itself on our capacity to reach out across Wales and make real changes, including influencing policy, supporting local alliance groups, engaging in innovative projects and highlighting key areas of need that are yet to be addressed fully.

We achieve most of our work through the true spirit of partnership and shared resources, and we believe that in the future years this method of working will not only continue to prove effective in delivering outcomes, but it will also become essential if we are to continue to generate innovative and essential support solutions to families across Wales.

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Advice helplines


Carers UK provides high quality advice and information to carers and the professionals who support carers. Staffed by experts, they have years of experience of dealing with the problems carers face.

The Advice line is open Monday to Friday, 10am – 4pm, tel: 0808 808 7777

mencap cymru

Mencap WISE is a free service that offers support, advice and information in English and Welsh. The service is available to everyone in Wales, whether you are a person with a learning a learning disability, a family member or a friend. They can give you the information you need to understand the rights of people with a learning disability and to support them to access services or challenge decisions.

The Mencap WISE Helpline is open Monday to Friday, 9am – 5pm, tel: 0808 8000 300

Community Groups

Brecon Carer Groups
Bridgend Parent and Carer Group
Caerphilly Carers Group
Cardiff and the Vale Parents Federation
Ceredigion Carers Forum
Community Lives Consortium Relatives Forum
Conwy Connect – Carers
Denbighshire Carers Forum
Learning Disability Flintshire
Gwynedd LD Carers outreach
Knighton Parent Carer Group
Powys Carers Groups
Mencap Carers Support Group,
Anglesey Mencap
Carmarthenshire family support

Merthyr Carer Action Group
Monmouthshire Carers Group Montgomeryshire Family Carers Centre
Montgomeryshire Open Door parent carer group
Newtown Newtown Carers Group
Parents for Change, Newport
Pembrokeshire Carers Group
Radnor Carers Group
Rhondda Cynon Taff Carers group
Smile Parent Group
The Carers Outreach Service, Bangor
Welshpool Carer Group
Ystradgynlais Parent Group
Llandrindod Wells Carer Group

Mencap Carers Support Group, Anglesey

Denbighshire Carers Forum

Learning Disability Flintshire

Ceredigion Carers Forum

Wrexham Carer Group

The Carers Outreach Service, Bangor

Gwynedd LD Carers outreach

Conwy Connect – Carers

Newtown and Welshpool Carer Group

Montgomeryshire Open Door parent carer group

Montgomeryshire Family Carers Centre

Radnor Carers Group

Knighton Parent Carer Group

Brecon Carers Group

Pembrokeshire Carers Group

Ystradgynlais Parent Group

Mencap Carmarthenshire family support

Merthyr Carer Action Group

Monmouthshire Carers Group

Rhondda Cynon Taff Carers group

Caerphilly Carers Group

Community Lives Consortium Relatives Forum

Bridgend Parent and Carer Group

Parents for Change, Newport

Cardiff and the Vale Parents Federation